l DrScore  
Find a doctor l Score your doctor l For Patients l About DrScore
l
Patient Advocacy Groups
One of the best ways patients can learn more about medical conditions and illnesses is through patient advocacy groups. Patient advocacy groups provide a wealth of information, services and support. We encourage you to use and support these organizations. They exist to serve you-the patient-and are key to the research of new and improved treatments, and ultimately a cure, for many diseases.

PATIENT ADVOCACY GROUPS

DrScore believes in the power of patient advocacy and supports these organizations, which are tirelessly working to improve the quality of life of millions of patients throughout the United States.

Below is a list of many patient advocacy groups in the United States. Please click on a group to learn more about that cause and organization.

AboutFace USA
Alpha-1 Foundation
Alstrom Syndrome International
Alzheimer's Association, Inc.
American Autoimmune Related Diseases Association
American Brain Tumor Association
American Cancer Society
American Diabetes Association
American Foundation of Urologic Disease
American Health Information Management
American Heart Association
American Kidney Fund
American Liver Foundation
American Lung Association
American Skin Association
American Tinnitus Association
Arthritis Foundation
Asthma and Allergy Foundation of America
Attention Deficit Disorder Resources
Autism Society of America
BCCNS Life Support Network
Brain Injury Association of America
Celiac Sprue Association/USA
Center for Professional Well-Being
CHADD: Children and Adults with Attention-Deficit/Hyperactivity Disorder
Chromosome Deletion Outreach, Inc.
cleftAdvocate, a program of AboutFace USA
CNSV-network
Cornelia de Lange Syndrome Foundation, Inc.
Cutaneous Lymphoma Foundation
DebRA of America, Inc.
Easter Seals
Ehlers-Danlos National Foundation
Epilepsy Foundation
Families of Spinal Muscular Atrophy
Fibromyalgia Network
Hidradenitis Suppurativa Foundation, Inc.
Huntington's Disease Society of America
IDEAS: IsoDicentric 15 Exchange, Advocacy & Support
International Cesarean Awareness Network
International Mosaic Down Syndrome Association
International Pemphigus Foundation
International Rett Syndrome Association
Interstitial Cystitis Association
Kidney Cancer Association
Lance Armstrong Foundation
Lupus Foundation of America, Inc.
Marinesco-Sjogren Syndrome
Mesothelioma Guide
Myasthenia Gravis Foundation of America, Inc.
National Alliance on Mental Illness
National Alopecia Areata Foundation
National Aphasia Association
National Breast Cancer Awareness Month
National Down Syndrome Society
National Eczema Association
National Foundation for Ectodermal Dysplasias
National Hemophilia Foundation
National Hospice and Palliative Care Organization
National Kidney Foundation
National Marfan Foundation
National Marrow Donor Program
National Mental Health Association
National Multiple Sclerosis Society
National Osteoporosis Foundation
National Ovarian Cancer Coalition
National Pediculosis Association, Inc.
National Psoriasis Foundation
National Sleep Foundation
National Tay-Sachs & Allied Diseases Association
Osteogenesis Imperfecta Foundation
Pachyonychia Congenita Project
Pancreatic Cancer Action Network
Parent Project Muscular Dystrophy
Polycystic Ovarian Syndrome Association
Prevent Blindness America
PXE International, Inc.
RESOLVE: The National Infertility Association
Restless Legs Syndrome Foundation
Scleroderma Foundation
Sickle Cell Disease Association of America, Inc.
Spina Bifida Association of America
The ALS Association
The International Pemphigus Foundation
The Jesse Cause - Saving Babies from Group B Strep
The LAM Foundation
The Leukemia & Lymphoma Society
The Myositis Association
The Paget Foundation
The Sjögren's Syndrome Foundation
The Sturge-Weber Foundation
The TMJ Assoication
Tourette Syndrome Association, Inc.
Trisomy 18 Support Foundation, Inc.
Vitiligo Support International
Women's Cancer Network (Gynecologic Cancer Foundation)
Xeroderma Pigmentosum Skin Cancer Foundation
Xeroderma Pigmentosum Society
Y-ME National Breast Cancer Organization

back to top

If there is a patient group not on our list that you would like considered for addition, please contact our Director of Patient Advocacy


PATIENT ADVOCACY GROUP INFORMATION


AboutFace USA
www.aboutfaceusa.org
AboutFace USA is a non-profit organization dedicated to providing information, emotional support, and educational programs to individuals who have a facial disfigurement, and to their families.
 
back to top
 

Alpha-1 Foundation
www.alphaone.org
The Alpha-1 Foundation is dedicated to providing the leadership and resources that will result in increased research, improved health, worldwide detection and a cure for Alpha-1 Anititrypsin Deficiency (Alpha-1). Alpha -1 is a genetic disorder that can cause liver and lung disease in children and adults.
 
back to top
 

Alstrom Syndrome International
www.jax.org/alstrom
This mission of Alstrom Syndrome International is to provide support, information, and coordination world-wide to families and professionals in order to treat and cure Alstrom Syndrome.
 
back to top
 

Alzheimer's Association, Inc.
www.alz.org
The mission of the Alzheimer's Association is to eliminate Alzheimer's disease through the advancement of research and to enhance quality care and support for individuals, their families and care partners.
 
back to top
 

American Autoimmune Related Diseases Association
www.aarda.org
The American Autoimmune Related Diseases Association is dedicated to the eradication of autoimmune diseases and the alleviation of suffering and the socioeconomic impact of autoimmunity through fostering and facilitating collaboration in the areas of education, public awareness, research, and patient services in an effective, ethical and efficient manner.
 
back to top
 

American Brain Tumor Association
www.abta.org
The American Brain Tumor Association exists to eliminate brain tumors through research and to meet the needs of brain tumor patients and their families.
 
back to top
 

American Cancer Society
www.cancer.org
The American Cancer Society is the nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and dimishing suffering from cancer, through research, education, advocacy, and service.
 
back to top
 

American Diabetes Association
www.diabetes.org
The American Diabetes Association is the nation's leading nonprofit health organization providing diabetes research, information and advocacy. The mission of the Association is to prevent and cure diabetes and to improve the lives of all people affected by diabetes.
 
back to top
 

American Foundation of Urologic Disease
www.afud.org
The mission of the American Foundation of Urologic Disease is the prevention and cure of urologic diseases through the expansion of research, education, and patient advocacy.
 
back to top
 

American Health Information Management
www.myPHR.com
A guide to understanding and managing your personal health information. This Web site is provided as a free public service by the American Health Information Management Association (AHIMA). The AHIMA is a national non-profit professional association dedicated to the effective management of personal health information needed to deliver quality healthcare to the public.
 
back to top
 

American Heart Association
www.americanheart.org
The American Heart Association is a national voluntary health agency whose mission is to reduce disability and death from cardiovascular diseases and stroke
 
back to top
 

American Kidney Fund
www.kidneyfund.org
The American Kidney Fund is the nation's leading voluntary health organization serving people with and at risk for kidney disease through direct financial assistance, comprehensive education, clinical research, and community serive programs.
 
back to top
 

American Liver Foundation
www.liverfoundation.org
The American Liver Foundation (ALF) is a national, nonprofit organization dedicated to the prevention, treatment, and cure of hepatitis and other liver diseases through research, education, and advocacy on behalf of those at risk of or affected by liver disease.
 
back to top
 

American Lung Association
www.lungusa.org
The American Lung Association fights lung disease in all its forms, with special emphasis on asthma, tobacco control and environmental health.
 
back to top
 

American Skin Association
www.americanskin.org
The American Skin Association (ASA) is a volunteer-led health organization dedicated - through research, education and advocacy - to saving lives and alleviating human suffering caused by the full spectrum of skin disorders.
 
back to top
 

American Tinnitus Association
www.ata.org
The American Tinnitus Association (ATA) is the national champion of tinnitus awareness, prevention, and treatment.
 
back to top
 

Arthritis Foundation
www.arthritis.org
The mission of the Arthritis Foundation is to improve lives through leadership in the prevention, control and cure of arthritis and related diseases.
 
back to top
 

Asthma and Allergy Foundation of America
www.aafa.org
The Asthma and Allergy Foundation of America (AAFA) is the premier patient organization dedicated to improving the quality of life for people with asthma and allergies and their caregivers, through education, advocacy and research.
 
back to top
 

Attention Deficit Disorder Resources
www.addresources.org
The website of ADD Resources has over 100 articles written by national ADHD authorities as well as adults with ADHD. Plenty of information for parents too. 100 plus links to ADHD-related websites. Includes the National ADHD Directory with over 1000 ADHD Service Providers listed as well as a National ADHD Events Calendar. Free monthly eNews available.
 
back to top
 

Autism Society of America
www.autism-society.org
Autism Society of America (ASA) is the leading voice and resource of the entire autism community in education, advocacy, services, research and support. The ASA is committed to meaningful participation and self-determination in all aspects of life for individuals on the autism spectrum and their families.
 
back to top
 

BCCNS Life Support Network
www.bccns.org
The BCCNS Life Support Network supports people and families affected by Basal Cell Carcinoma Syndrome (a.k.a. Gorlin Syndrome) through education, referrals, support and research.
 
back to top
 

Brain Injury Association of America
www.biausa.org
The Brain Injury Association of America's mission is to create a better future through brain injury prevention, research, education, and advocacy.
 
back to top
 

Celiac Sprue Association/USA
www.csaceliacs.org
As a member-based, non-profit organization, Celiac Sprue Association (CSA) is dedicated to helping individuals with celiac disease and dermatitis herpetiformis and their families worldwide through education, information and research.
 
back to top
 

Center for Professional Well-Being
www.CPWB.org
The Center for Professional Well-Being conducts crisis-intervention assessments and on-site visits for individual professionals or their organizations to reduce distress and promote personal and professional well-being. The majority of services have been for physicians. Presentations are preventively oriented to promote practice harmony and reduce practice or merger distress.
 
back to top
 

CHADD: Children and Adults with Attention-Deficit/Hyperactivity Disorder
www.chadd.org
CHADD works to improve the lives of people affected by AD/HD through collaborative leadership, advocacy, research, education, and support.
 
back to top
 

Chromosome Deletion Outreach, Inc.
www.chromodisorder.org
Chromosome Deletion Outreach's mission is to provide support to parents of children born with rare chromosome disorders, gather and disseminate information and promote research and a positive community understanding of these disorders.
 
back to top
 

cleftAdvocate, a program of AboutFace USA
www.cleftadvocate.org
The mission of Cleft Advocate is to educate, inspire and empower families whose lives are touched by cleft lip and palate or other craniofacial anomalies.
 
back to top
 

CNSV-network
www.cnsv.net
CNSV-network is a patient-centered, non-commercial, volunteer-run Web site and Internet-based support service for people with Central Nervous System Vasculitis, their families and the health care community.
 
back to top
 

Cornelia de Lange Syndrome Foundation, Inc.
www.cdlsusa.org
The Cornelia de Lange Syndrome Foundation is a family support organization which exists to ensure early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lifetime.
 
back to top
 

Cutaneous Lymphoma Foundation
www.clfoundation.org
The Cutaneous Lymphoma Foundation is an independent, non-profit patient advocacy organization dedicated to supporting people with cutaneous lymphomas by promoting awareness and education, advancing patient care, and facilitating research.
 
back to top
 

DebRA of America, Inc.
www.debra.org
DebRA is dedicated to finding a cure for Dystrophic Epidermolysis Bullosa (EB), which affects 1 out of every 50,000 live births in the United States today.
 
back to top
 

Easter Seals
www.easterseals.com
Easter Seals has been helping individuals with disabilities and special needs, and their families, live better lives for more than 80 years.
 
back to top
 

Ehlers-Danlos National Foundation
www.ednf.org
Ehlers-Danlos National Foundation creates resources for those affected by the connective tissue disorder Ehlers-Danlos Syndrome.
 
back to top
 

Epilepsy Foundation
www.epilepsyfoundation.org
The Epilepsy Foundation will ensure that people with seizures are able to participate in all life experiences; and will prevent, control and cure epilepsy through research, education, advocacy and services.
 
back to top
 

Families of Spinal Muscular Atrophy
www.fsma.org
Families of Spinal Muscular Atrophy is the largest international organization dedicated solely to eradicating spinal muscular atrophy (SMA) by promoting and supporting research; helping families cope with SMA through informational programs and support; and educating the public and professional community about SMA.
 
back to top
 

Fibromyalgia Network
www.fmnetnews.com/
Our mission is simple: we aim to educate and assist patients with ad-free, patient-focused information that they can put to use today. We strive to make each issue of the Fibromyalgia Network Journal as accurate as possible, basing articles on published scientific findings, with many of them reviewed and edited by the experts for accuracy. Fibromyalgia Network is an organization that attends medical conferences, interviews the experts, and sifts through the details in the medical journals for our members—so that we can deliver up-to-date objective reporting and information that you won't find anywhere else. Our major goals for enriching the lives of fibromyalgia and chronic fatigue patients include providing education, improving awareness of syndromes through May 12 activities and dissemination of our brochures, and promoting research (e.g., in-kind services to AFSA).
 
back to top
 

Hidradenitis Suppurativa Foundation, Inc.
www.hs-foundation.org
The Hidradenitis Suppurativa Foundation, Inc. (HSF) is a nonprofit public benefit corporation dedicated to improving the quality of life and quality of care for individuals and families affected by Hidradenitis Suppurativa (HS). The HSF fosters and encourages worldwide research by developing and supporting an interdisciplinary family of scientists and physicians devoted to studying the molecular and cellular basis of HS, in order to develop and deliver more effective forms of treatment and preventative measures for those with this common, debilitating, and eminently chronic disease.
 
back to top
 

Huntington's Disease Society of America
www.hdsa.org
The Huntington's Disease Society of America (HDSA) is dedicated to finding a cure for Huntington's Disease (HD) while providing support and services for those living with HD and their families.
 
back to top
 

IDEAS: IsoDicentric 15 Exchange, Advocacy & Support
www.idic15.org
IDEAS is a non profit organization providing information, education, and support to families affected by isodicentric and interstitial duplications of chromosome 15; and promoting research and understanding of this rare genetic disorder.
 
back to top
 

International Cesarean Awareness Network
www.ican-online.org
The International Cesarean Awareness Network, Inc.'s mission is to improve maternal-child health by preventing unnecessary cesareans through education, providing support for cesarean recovery, and promoting Vaginal Birth After Cesarean.
 
back to top
 

International Mosaic Down Syndrome Association
www.imdsa.com
International Mosaic Down Syndrome Association is designed to provide emotional support, information and research to those touched by mosaic Down syndrome.
 
back to top
 

International Pemphigus Foundation
www.pemphigus.org
The International Pemphigus Foundation is dedicated to providing information and support to the community of people living with the rare autoimmune skin diseases pemphigus and pemphigoid, including the family members, friends and medical professionals who care about and care for them.
 
back to top
 

International Rett Syndrome Association
www.rettsyndrome.org
The mission of the International Rett Syndrome Association (IRSA) is to support and stimulate biomedical research that will determine the cause and find treatments and cures for Rett syndrome, to increase public awareness of Rett syndrome, and to provide informational and emotional support to families of children with Rett syndrome.
 
back to top
 

Interstitial Cystitis Association
www.ichelp.com
Founded in 1984, the Interstitial Cystitis Association (ICA) is a not-for-profit health organization dedicated to providing patient and physician educational information and programs, patient support, public awareness and, most importantly, research funding.
 
back to top
 

Kidney Cancer Association
www.curekidneycancer.org
The Kidney Cancer Association is a membership organization made up of patients, family members, physicians, researchers, and other health professionals.
 
back to top
 

Lance Armstrong Foundation
www.laf.org
The Lance Armstrong Foundation (LAF) believes that in the battle with cancer, knowledge is power and attitude is everything. Founded in 1997 by cancer survivor and cycling champion Lance Armstrong, the LAF provides the practical information and tools people living with cancer need to live strong.
 
back to top
 

Lupus Foundation of America, Inc.
www.lupus.org
With more than 200 chapters, branches and support groups in 30 states, the Lupus Foundation of America (LFA) is the nation's leading non-profit voluntary health organization dedicated to finding the causes and cure for lupus. Their mission is to improve the diagnosis and treatment of lupus, support individuals and families affected by the disease, increase awareness of lupus among health professionals and the public, and find the causes and cure.
 
back to top
 

Marinesco-Sjogren Syndrome
www.marinesco-sjogren.org
The purpose of this website is to provide information and support to families affected by Marinesco-Sjogren Syndrome and to encourage communication between doctors and researchers interested in this disorder.
 
back to top
 

Mesothelioma Guide
www.mesotheliomaguide.co
MesotheliomaGuide.co, a site that aims to provide information on actively recruiting clinical trials for veterans suffering with malignant mesothelioma.
 
back to top
 

Myasthenia Gravis Foundation of America, Inc.
www.myasthenia.org
The Mission of the Foundation is to facilitate the timely diagnosis and optimal care of individuals affected by myasthenia gravis and closely related disorders and to improve their lives through programs of patient services, public information, medical research, professional education, advocacy and patient care.
 
back to top
 

National Alliance on Mental Illness
www.nami.org
The National Alliance on Mental Illness is the nation’s largest grassroots mental health organization dedicated to improving the lives of persons living with serious mental illness and their families.
 
back to top
 

National Alopecia Areata Foundation
www.alopeciaareata.com
The mission of the National Alopecia Areata Foundation (NAAF) is to support research to find a cure or acceptable treatment for alopecia areata, to support those with the disease, and to educate the public about alopecia areata.
 
back to top
 

National Aphasia Association
www.aphasia.org
The National Aphasia Association (NAA) is a nonprofit organization that promotes public education, research, rehabilitation and support services to assist people with aphasia and their families.
 
back to top
 

National Breast Cancer Awareness Month

For more than two decades, the National Breast Cancer Awareness Month (NBCAM) has educated women about breast cancer, especially the importance of detecting the disease in its earliest stages through screening mammography, clinical breast examination, and for women 20 years of age and older, breast self-examination. The NBCAM hopes that visitors to this site will join them in October and all year as they reach out to all women throughout the United States with the important messages about early detection and the value of early treatment if breast cancer is detected.
 
back to top
 

National Down Syndrome Society
www.ndss.org
The mission of the National Down Syndrome Society is to benefit people with Down syndrome and their families through national leadership in education, research and advocacy.
 
back to top
 

National Eczema Association
www.nationaleczema.org
The National Eczema Association for Science and Education (NEASE) works to improve the health and the quality of life of all persons living with atopic dermatitis/eczema, providing emotional support, information, and resources to those who have the disease as well as their loved ones, while raising public awareness of the disease.
 
back to top
 

National Foundation for Ectodermal Dysplasias
www.nfed.org
The NFED seeks to enrich the lives of individuals affected by all forms of the ectodermal dysplasia syndromes through eduction, support, services and research.
 
back to top
 

National Hemophilia Foundation
www.hemophilia.org
The mission of the National Hemophilia Foundation is education, research and advocacy on behalf of people with bleeding disorders.
 
back to top
 

National Hospice and Palliative Care Organization
http://www.nhpco.org/templates/1/homepage.cfm
 
back to top
 

National Kidney Foundation
www.kidney.org
The National Kidney Foundation, Inc., a major voluntary health organization, seeks to prevent kidney and urinary tract diseases, improve the health and well-being of individuals and families affected by these diseases, and increase the availability of all organs for transplantation.
 
back to top
 

National Marfan Foundation
www.marfan.org
The National Marfan Foundation is dedicated to saving lives, and improving the quality of life for individuals and families affected by the Marfan syndrome and related disorders.
 
back to top
 

National Marrow Donor Program
www.marrow.org
The National Marrow Donor Program (NMDP) helps people who need a life-saving marrow or blood cell transplant. They connect patients, doctors, donors and researchers to resources they need to help more people live longer, healthier lives
 
back to top
 

National Mental Health Association
www.nmha.org
The National Mental Health Association is dedicated to promoting mental health, preventing mental disorders and achieving victory over mental illness through advocacy, education, research and service.
 
back to top
 

National Multiple Sclerosis Society
www.nmss.org
The mission of the National Multiple Sclerosis Society is to end the devastating effects of MS.
 
back to top
 

National Osteoporosis Foundation
www.nof.org
The National Osteoporosis Foundation's mission is to prevent osteoporosis, to promote lifelong bone health, to help improve the lives of those affected by osteoporosis and related fractures, and to find a cure.
 
back to top
 

National Ovarian Cancer Coalition
www.ovarian.org
This mission of the National Ovarian Cancer Coalition is to raise awareness and promote education about ovarian cancer. The Coalition is committed to improving the survival rate and quality of life for women with ovarian cancer.
 
back to top
 

National Pediculosis Association, Inc.
www.headlice.org
The National Pediculosis Association®, Inc. (NPA) is the only non-profit health and education agency dedicated to protecting children from the misuse and abuse of potentially harmful lice and scabies pesticidal treatments. As part of its mission, the NPA works to encourage our nation's health and child care professionals to adopt standardized head lice management programs in an effort to keep the children in school lice and nit free.
 
back to top
 

National Psoriasis Foundation
www.psoriasis.org
The mission of the National Psoriasis Foundation is to improve the quality of life of people who have psoriasis and psoriatic arthritis. Through education and advocacy, they promote awareness and understanding, ensure access to treatment and support research that will lead to effective management and, ultimately, a cure.
 
back to top
 

National Sleep Foundation
www.sleepfoundation.org
The National Sleep Foundation (NSF) is an independent nonprofit organization dedicated to improving public health and safety by achieving understanding of sleep and sleep disorders, and by supporting education, sleep-related research, and advocacy.
 
back to top
 

National Tay-Sachs & Allied Diseases Association
www.ntsad.org
The National Tay-Sachs & Allied Diseases Association (NTSAD) is dedicated to the treatment and prevention of Tay-Sachs, Canavan, and related diseases, and to provide information and support services to individuals and families affected by these diseases, as well as the public at large.
 
back to top
 

Osteogenesis Imperfecta Foundation
www.oif.org
The Osteogenesis Imperfecta Foundation's mission is to improve the quality of life for individuals affected by OI through research to find treatments and a cure, education, awareness, and mutual support.
 
back to top
 

Pachyonychia Congenita Project
www.pachyonychia.org
The mission of the Pachyonychia Congenita Project (PC Project) is to find a cure for Pachyonychia Congenita.
 
back to top
 

Pancreatic Cancer Action Network
www.pancan.org
The Pancreatic Cancer Action Network, Inc. (PanCAN), established in 1999, is the first national patient advocacy organization for the pancreatic cancer community. PanCAN works to focus national attention on the need to find a cure for pancreatic cancer.
 
back to top
 

Parent Project Muscular Dystrophy
www.parentprojectmd.org
Parent Project Muscular Dystrophy's mission is to improve the treatment, quality of life, and long-term outlook for all individuals affected by Duchenne and Becker Muscular Dystrophy through research, advocacy, education and compassion.
 
back to top
 

Polycystic Ovarian Syndrome Association
www.pcosupport.org
The Polycystic Ovarian Syndrome Association exists to provide comprehensive information, support, and advocacy for women and girls with the condition known as polycystic ovary syndrome.
 
back to top
 

Prevent Blindness America
www.preventblindness.org
Founded in 1908, Prevent Blindness America is the nation's leading volunteer eye health and safety organization dedicated to fighting blindness and saving sight.
 
back to top
 

PXE International, Inc.
www.pxe.org
It is the mission of PXE International to initiate, fund and conduct research; provide support for individuals and families affected by pseudoxanthoma elasticum; and provide resources for healthcare professionals.
 
back to top
 

RESOLVE: The National Infertility Association
www.resolve.org
The mission of RESOLVE is to provide timely, compassionate support and information to people who are experiencing infertility and to increase awareness of infertility issues through public education and advocacy.
 
back to top
 

Restless Legs Syndrome Foundation
www.rls.org
The Restless Legs Syndrome Foundation is a nonprofit 501 (c)(3) agency that is dedicated to improving the lives of men, women, and children who live with this often devastating disease. The organization's goals are to increase awareness of Restless Legs Syndrome (RLS), to improve treatments, and, through research, to find a cure.
 
back to top
 

Scleroderma Foundation
www.scleroderma.org
The Scleroderma Foundation's mission is three-fold: To help patients and their families cope with scleroderma through mutual support programs, peer counseling, physician referrals, and educational information; to promote public awareness and education through patient and health professional seminars, literature, and publicity campaigns; to stimulate and support research to improve treatment and ultimately find the cause of and cure for scleroderma and related diseases.
 
back to top
 

Sickle Cell Disease Association of America, Inc.
www.sicklecelldisease.org
The Mission of the Sickle Cell Disease Association of America is to promote finding a universal cure for sickle cell disease while improving the quality of life for individuals and families where sickle cell related conditions exists.
 
back to top
 

Spina Bifida Association of America
www.sbaa.org
The mission of the Spina Bifida Association of America is to promote the prevention of spina bifida and to enhance the lives of all affected.
 
back to top
 

The ALS Association
www.alsa.org
The mission of the ALS Association is to find a cure for and improve living with ALS.
 
back to top
 

The International Pemphigus Foundation
www.pemphigus.org
The International Pemphigus Foundation is a non-profit, tax-exempt organization whose mission is to increase awareness of pemphigus/pemphigoid, both among the general public and the medical community; to provide emotional support to patients living with these diseases, their families and friends; and to advocate research into causes, diagnoses, treatments and cure.
 
back to top
 

The Jesse Cause - Saving Babies from Group B Strep
www.thejessecause.org
The Mission of The Jesse Cause is to promote Group B Strep Awareness.
 
back to top
 

The LAM Foundation
lam.uc.edu
The LAM Foundation provides support, education, and hope to women with Lymphangioleiomyomatosis (LAM), a progressive, debilitating lung disease.
 
back to top
 

The Leukemia & Lymphoma Society
www.leukemia.org
The Leukemia & Lymphoma Society is the world's largest voluntary health organization dedicated to funding blood cancer research, education and patient services. The Society's mission: Cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients and their families.
 
back to top
 

The Myositis Association
www.myositis.org
The mission of The Myositis Association is to find a cure for inflammatory and other related myopathies, while serving those affected by these diseases.
 
back to top
 

The Paget Foundation
www.paget.org
The Paget Foundation is a national voluntary health agency whose mission is to provide information on Paget's disease and other bone disorders and the effects of certain cancers on the skeleton to patients, family members and health professionals.
 
back to top
 

The Sjögren's Syndrome Foundation
www.sjogrens.org
The Sjögren's Syndrome Foundation provides patients practical information and coping strategies that minimize the effects of Sjögren's syndrome. In addition, the Foundation is the clearinghouse for medical information and is the recognized national advocate for Sjögren's syndrome.
 
back to top
 

The Sturge-Weber Foundation
www.sturge-weber.com
The Sturge-Weber Foundation’s mission is to improve the quality of life for individuals with Port Wine Stains (PWS), Sturge-Weber Syndrome (SWS) and Klippel-Trenaunay Syndrome (KT).
 
back to top
 

The TMJ Assoication
www.tmj.org
The TMJ Association is a national, non-profit organization whose mission is to improve the diagnosis, care and treatment of everyone affected by TMJ diseases and disorders through fostering research, education and other activities with the ultimate goal of preventing TMJ problems.
 
back to top
 

Tourette Syndrome Association, Inc.
www.tsa-usa.org
The Tourette Syndrome Association's mission is to identify the cause of, find the cure for and control the effects of Tourette Syndrome.
 
back to top
 

Trisomy 18 Support Foundation, Inc.
www.trisomy18support.org
The Trisomy 18 Support Foundation's mission is to guide the search for a cure and treatments, to educate and support medical professionals, and to create a caring worldwide community for affected families.
 
back to top
 

Vitiligo Support International
www.vitiligosupport.org
Vitiligo Support promotes awareness and education about vitiligo, provides information and interaction to people living with vitiligo, advocates on behalf of vitiligo patients, and strives to encourage and support medical research to find better treatments and a cure for vitiligo.
 
back to top
 

Women's Cancer Network (Gynecologic Cancer Foundation)
www.wcn.org
Started by the Gynecolgoic Cancer Foundation, the mission of the Women's Cancer Network is to keep women informed and to enable them to be their own health advocates.
 
back to top
 

Xeroderma Pigmentosum Skin Cancer Foundation
www.xpfoundation.org
The XP Foundation's mission is to find a cure for X.P. and develop treatment improvements; develop products to provide protection and add comfort and quality to the daily lives of X.P. patients; and to educate the public, policy makers and researchers on the disease and progress made in reaching a cure.
 
back to top
 

Xeroderma Pigmentosum Society
www.xps.org
The mission of XPS is to increase public awareness through education about xeroderma pigmentosum and related conditions; provide protection, through support and information exchange, to victims of this disease and their families; and to promote medical research to achieve a cure for XP.
 
back to top
 

Y-ME National Breast Cancer Organization
www.y-me.org
The mission of Y-ME National Breast Cancer Organization is to ensure, through information, empowerment and peer support, that no one faces breast cancer alone.
 
back to top
 
 
 
 
l
l
l
sitemap     |     advocacy relations     |     for doctors     |     for businesses     |     for researchers     |     for media
empty
empty
copyright © 2014 DrScore.com. all rights reserved.


Disclaimer:  The information on this website is provided for general informational purposes only and SHOULD NOT be relied upon as a substitute for sound professional medical advice, evaluation or care from your physician or other qualified healthcare provider. By using this site, you agree to the DrScore Terms of Use.
empty
empty